European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 online medical conference.

The session was part of the 10th European Conference on Rare Diseases & Orphan Products (ECRD2020) — which was to have occurred in Stockholm, but instead took place online via Zoom.

Dean Suhr is one of the rare disease patient advocates discussing the benefits of newborn screening at a recent conference. (Photos by Larry Luxner)

“We’re interested in this topic because our community feels poorly served by newborn screening,” said Nick Meade, policy director at Genetic Alliance UK, a national charity representing more than 230 British patient advocacy organizations.

Read the rest of the article on the Pompe Disease News blog.

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