Working Focus Group – Launch Minutes and Goals
Working Focus Group – Launch Minutes and Goals
Working Focus Group – Launch Minutes and Goals Read More »
RUSP
Working Focus Group Meeting Schedule
The Working Focus Groups all launched in July, 2020. The WFGs are meeting on an every 4 or every 6 week schedule. All WFGs are open to everyone to listen, learn, and contribute. Please join us. Register to receive meeting invitations. The Working Focus Groups descriptions can be found on the RUSP Nomination
Working Focus Group Meeting Schedule Read More »
Program Overview – RUSP Approval & State NBS Implementation
The May 20th, 2020 launch meeting has concluded. We had participants join from Australia to Europe, Canada to Argentina and all across the United States. You may view the video below. Written details of the RANSIP program, organization, EAG member bios, and the Focus Working Groups can be found on the RUSP Nomination page. Register
Program Overview – RUSP Approval & State NBS Implementation Read More »
Federal NBS Committee to Resume Work
Your Voice Mattered! Your phone calls, emails, and signing of the petition worked. HHS Secretary Azar has re-authorized the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) as a discretionary advisory committee. That means the committee can resume their work after a 6 month hiatus and cancelling two of their meetings. HHS indicated they
Federal NBS Committee to Resume Work Read More »
MLD & Newborn Screening Experts Meet to Launch MLD RUSP Nomination
MLD & Newborn Screening Experts Meet to Start Work on RUSP Nomination
MLD & Newborn Screening Experts Meet to Launch MLD RUSP Nomination Read More »