Announcements

Working Focus Group Meeting Schedule

The Working Focus Groups all launched in July, 2020.  The WFGs are meeting on an every 4 or every 6 week schedule. All WFGs are open to everyone to listen, learn, and contribute.  Please join us. Register to receive meeting invitations.         The Working Focus Groups descriptions can be found on the RUSP Nomination page. …

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Program Overview – RUSP Approval & State NBS Implementation

The May 20th, 2020 launch meeting has concluded. We had participants join from Australia to Europe, Canada to Argentina and all across the United States. You may view the video below. Written details of the RANSIP program, organization, EAG member bios, and the Focus Working Groups can be found on the RUSP Nomination page. Register …

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Federal NBS Committee to Resume Work

Your Voice Mattered! Your phone calls, emails, and signing of the petition worked.  HHS Secretary Azar has re-authorized the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) as a discretionary advisory committee. That means the committee can resume their work after a 6 month hiatus and cancelling two of their meetings.  HHS indicated they …

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MLD Newborn Screening website launches!

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