The Working Focus Groups all launched in July, 2020. The WFGs are meeting on an every 4 or every 6 week schedule. All WFGs are open to everyone to listen, learn, and contribute. Please join us. Register to receive meeting invitations. The Working Focus Groups descriptions can be found on the RUSP Nomination […]
Working Focus Group Meeting Schedule Read More »
The May 20th, 2020 launch meeting has concluded. We had participants join from Australia to Europe, Canada to Argentina and all across the United States. You may view the video below. Written details of the RANSIP program, organization, EAG member bios, and the Focus Working Groups can be found on the RUSP Nomination page. Register
Program Overview – RUSP Approval & State NBS Implementation Read More »
MLD Newborn Screening is very complicated – MLD Foundation has launched and is managing a program to deal with and overcome the challenges. This article is extracted from a poster first presented at WORLDSymposium in Orlando, Florida on February 12, 2020. You can download the poster here. We Have a Working Screen A de-identified
Implementing MLD Newborn Screening – Complicated but Very Doable Read More »
