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MLD NBS In Your Town
MLD NBS Implementation 2023 is the year we organize and start implementing state by state. Check back here in mid-January to join the effort in your state and country. Click to be notified when we start Quick Links What is the RUSP? Organizing for Sucess Expert Advisory Group Working Focus Groups … including …
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Expert Advisory Group
Expert Advisory Group – Private Page Quick Links Meeting Schedule EAG videos Expert Advisory Group Meeting Videos The EAG meeting videos are provided for those who missed any particular meeting or for those that wish to revist a discussion. At this point we are not making these videos public. August 6th, 2020 June 24, 2020 …
Working Focus Group – Launch Minutes and Goals
Working Focus Group – Launch Minutes and Goals
Working Focus Group Meeting Schedule
The Working Focus Groups all launched in July, 2020. The WFGs are meeting on an every 4 or every 6 week schedule. All WFGs are open to everyone to listen, learn, and contribute. Please join us. Register to receive meeting invitations. The Working Focus Groups descriptions can be found on the RUSP Nomination …
7 MLD NBS Working Focus Groups Launching in July
European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 online medical conference.
Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe
European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 online medical conference.
Videos
MLD NBS Videos All overview NBS Minute research policy screening Lab ethics All All overview NBS Minute research policy screening Lab ethics Overview of the MLD NBS program – 60 seconds US NBS Overview – 60 seconds Dried Blood Spots – What’s the Big Deal? – NBS Minute MLD NBS Screening flow – NBS Minute …